angelina childhood dementia

They need urgent action to end this cruel disease. Teenage girl Angelina has been diagnosed with a terminal illness so rare its the only known case in her country.

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Lafora Disease is a terminal neurological disease characterised by progressive myoclonus epilepsy tonic-clonic seizures and childhood dementia.

. Angelina pictured with mum Niki as a baby was diagnosed with childhood dementia at age 14. It is one of 70 disorders that cause dementia in children but because theyre regarded as individual and extremely rare diseases the healthcare support and clinical research is grossly inadequate. A lengthy hospital stay followed along with extensive genetic testing which finally confirmed Angelinas shocking diagnosis of Lafora Disease which is one of the 70 types of childhood dementia.

They are losing their memories speech mobility and their lives. Angelina is at high risk of Sudden Unexpected Death in Epilepsy SUDEP so every day is like a ticking time bomb Since her beloved daughters diagnosis Niki has dedicated her time to raising awareness of Lafora Disease and Childhood Dementia through TV radio and magazine interviews and broadcasts in Australia. The simple three-ingredient method to remove mould from clothes An 11-year-old British girl has forgotten nearly everything she has learned after being diagnosed with childhood dementia.

Angelina Lati lived a normal life that was until three years ago when she experienced her first seizure. Angelina Lati 17 Isla Donnell 12 Jude Donnell 10 and Greta Gowans 6 all have childhood dementia. Angelina is fed 95 by her feeding tube.

Now in July 2021 she is 99 formula fed. Supplied Then she began dropping glasses while setting the dining table and falling over while walking the family dog prompting Ms Markou to make an appointment with a neurologist. Today she is unable to attend school and suffers from significant cognitive decline.

For Angelina this made her irritable gave her mood swings and impacted her mental health. Molly Ingham was a perfectly healthy child until she turned six when she began having seizures started to lose her eyesight memory and mobility. Through bold innovative approaches to both advocacy and research we strive to fast-track effective therapies and cures until we have a world without childhood dementia.

Their families are pleading for awareness and clinical research into the disease. Childhood Dementia Initiative exists to find answers and better ways to research and treat the 70 disorders that lead to childhood dementia. Your donation will drive awareness and a wave of innovative new research to end childhood dementia.

Learn more and donate here. Symptoms include seizures muscle spasms difficulty walking behavioural changes confusion and cognitive decline. Posted on 18 July 2021 A family of Greek Cypriots living in Loughton Essex will be Climbing For Angelina to raise awareness of Lafora Disease and Childhood Dementia.

Researchers know Angelinas childhood dementia is caused by a mutation in one of two genes that control the way cells store glycogen a form of sugar resulting in. But instead shes facing a far greater test she suffers from childhood dementia. Angelina was diagnosed with childhood dementia caused by a rare genetic disorder called Lafora disease.

Within just a few years from the onset of symptoms children typically find it hard to complete daily activities. 2017 Angelina singing on her 13th Birthday We are now in early 2022 and Angelina has slowed down a lot but is still able to walk and talk slowly her dementia is more progressive her seizures are more frequent and she mainly sits in her wheelchair most of the day. Angelina and her family share her story to help people understand what childhood dementia can look like for a young person.

Angelina is the only known case in Australia. This commonly occurs with changes in the frontal cortex of the brain as a result of progressive childhood dementia. At 17 Angelina Lati should be preparing for her year 12 exams.

Angelina Lati 17 Isla Donnell 12 Jude Donnell 10 and Greta Gowans 6 all have childhood dementia. Three years ago she experienced her first seizure which was diagnosed as Lafora Disease 9 months later. All donations over 2 are tax deductible.

They will be Climbing For Angelina to raise awareness of Lafora Disease and Childhood Dementia. Urgently disrupting the impact of childhood dementia. Currently there are only 70 registered patients globally with possibly many more who have been misdiagnosed.

Angelina had no symptoms until she was 14 years old. She started to refuse to eat co-operate with self-care get out of bed or take her medications. A video featuring 16-year-old Angelina has helped generate a greater understanding of the impacts of childhood dementia and the need for action.

Angelina Lati lived a normal life until she was 14 years old. Children like Angelina have been left without treatments or hope for too long. Angelinas story gives devastating insight into the impact of childhood dementia.

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